Citizen led collaborative competitions, requires citizens to be directly involved in networked approaches to solving biological problems such as finding the causes of disease, discovering new therapies and identifying who should be given which drug. Citizen science requires new modes of communication and collaboration that go beyond traditional paradigms. It also requires nontraditional funding strategies. This session will detail existing and emerging collaborative ‘challenge projects’ being developed by Sage Bionetworks, METABRIC, Norway Radium Hospital, IBM, and Google."
Bio
Margaret Anderson
Margaret Anderson is executive director of FasterCures, a nonprofit think tank, catalyst for action and center of the Milken Institute that works across sectors to improve the medical research enterprise. Anderson defines FasterCures’ strategic priorities, develops its programmatic portfolio, and manages its operations. Before her appointment, she was FasterCures' chief operating officer for five years. Previously Anderson was deputy director at the Center on AIDS and Community Health at the Academy for Educational Development where she managed programs funded by the Ford Foundation, the Annie E. Casey Foundation and the Centers for Disease Control and Prevention; program director at the Society for Women's Health Research where she focused on gender differences in research; a Health Sciences Analyst at the American Public Health Association where she focused on infectious diseases; and project director and analyst in the Biological Applications Program at the Congressional Office of Technology Assessment. She serves as incoming president of the Alliance for a Stronger FDA, is a board member of the Council for American Medical Innovation and the Coalition for the Advancement of Medical Research, co-chairs the e-health Initiative’s Council on Data and Research, and is involved in numerous health and science policy coalitions and committees. She received a master's degree in science, technology and public policy from George Washington University's Elliott School of International Affairs.
Linda Avey
Linda Avey is co-founder and CEO of Curious, Inc., a personal data discovery platform. Previously, she co-founded 23andMe, the leading personal genetics company.
Henry Chesbrough
Henry Chesbrough is Adjunct Professor and Executive Director at the Center for Open Innovation, Haas School of Business, University of California, Berkeley.
Regis Kelly
Dr. Regis B. Kelly is the Director of one of four California Institutes for Science and Innovation, created by the California Legislature to strengthen the academic foundation of its technology-based industries. QB3 is the only one of the four devoted exclusively to biology and to the life science industries. It is an innovation center made up of over 200 quantitative biologists at three northern California campuses (UCB, UCSC & UCSF) working at the interface of the physical and biological sciences and a team of professionals converting its discoveries into practical benefits for society.
Ilya Kupershmidt
Mr. Kupershmidt leads NextBio's product, scientific computing and content groups. His team includes PhDs and MDs from leading academic institutions with extensive experience in genomics, computational biology and clinical research. Mr. Kupershmidt has a decade of experience in the design and implementation of genomic solutions for organizations involved in basic and translational research, as well as drug discovery.
Prior to NextBio, Mr. Kupershmidt was the Director of Professional Services at Silicon Genetics. There he helped develop and customize software solutions for the analysis and management of high throughput data generated by genomic and proteomic technologies. Mr. Kupershmidt joined Silicon Genetics as an early stage startup and successfully worked with hundreds of academic institutions and commercial enterprises.
Previously, Mr. Kupershmidt carried out research as a geneticist at the UCSD Howard Hughes Medical Institute where he studied transcriptional mechanisms of gene expression regulation during pituitary development. Mr. Kupershmidt is currently a PhD candidate at the SciLifeLab Institute, in Stockholm, Sweden.
Adam Margolin
Adam Margolin is the lead of Sage Bionetworks' Academic Institutional Reward Board.
John Quackenbush
John Quackenbush is an American computational biologist and genome scientist. He is the Professor of Biostatistics and Computational Biology, Professor of Cancer Biology at the Dana-Farber Cancer Institute (DFCI), as well as the director of its Center for Cancer Computational Biology (CCCB). Quackenbush also holds an appointment as Professor of Computational Biology and Bioinformatics in the Department of Biostatistics at the Harvard School of Public Health (HSPH).
Adam Margolin, Director of Computational Biology for Sage Bionetworks, discusses Sage's commitment to building community data networks through open citizen competition.
