Personalized Health Project: An Action Summit for Life Science Leaders
The Personalized Health Project and video was sponsored by the Ewing Marion Kauffman Foundation.
Action Item #1
The Link: constructing a virtual, wiki-style "Whole Earth Catalogue" encompassing all PHP entrepreneurs, labs, projects and efforts.
Team Co-Leaders:
John Wilbanks, Science Commons
Edward Kirulutu, CTO, Omicia, former Senior Director of Informatics at Merck Research Labs
Michael Cariaso, Founder, SNPedia
Pre-Summit Discussion group:
John Wilbanks, Science Commons
Edward Kirulutu, PhD, CTO, Omicia, former Senior Director of Informatics at Merck Research Labs
Michael Cariaso, Founder, SNPedia
Eric Schadt, PhD, CTO, Pacific Biosciences
Aza Raskin, Co-Founder, Massive Health/Firefox
Action Item #2
The Blueprint: Designing a dynamic master plan that incorporates projects and needs to accelerate personalized health
Team Co-Leaders:
Fred Lee, MD, Director, P4 Institute
David Shaywitz, MD, PhD, Director of Strategic and Commercial Planning, Theravance
Pre-Summit discussion group:
Fred Lee, MD, Director, P4 Institute
David Shaywitz, MD, PhD, Director of Strategic and Commercial Planning, Theravance
James Heywood, Co-Founder and Chairman, PatientsLikeMe
Michael Cariaso, Co-Founder, SNPedia
Others TBA
Action Item #3
The Fund for Human Integration: A Proposed Project for Creative Funding of Personalized Health Projects
Team Leaders:
Linda Molnar, PhD, founding principal, LKM Strategic Consulting
Sanjay Mistray, PhD, Quaker BioVentures
Ralph Snyderman, MD, Chancellor Emeritus, Duke University (By Skype)
Pre-Meeting Discussion group:
Linda Molnar, PhD, founding principal, LKM Strategic Consulting
Sanjay Mistray, PhD, Quaker BioVentures
Ralph Snyderman, MD, Chancellor Emeritus, Duke University
Sue Siegel, Mohr-Davidson Ventures
Fred Frank, PJ Solomon
Group round table discussion: Next Steps
Discuss possible PHP Assembly in late 2011 or early 2012
Closing Remarks:
David Ewing Duncan, joined by Stephen Spielberg, Frank Douglas, Linda Molnar, Lesa Mitchell, and Regis Kelly
Bio
Michael Cariaso
Michael Cariaso, Founder, SNPedia
Frank Douglas
Frank Douglas, MD, PhD, co-author of the Personalized Health Project study; President and CEO of Austen BioInnovation Institute in Akron, Ohio; and founder of MIT's Center for Biomedical Innovation.
David Ewing Duncan
David Ewing Duncan is an award-winning, best-selling author of six books and numerous essays, articles and short stories, and a television, radio and film producer and correspondent. He is the co-host of NPR's Biotech Nation.
Duncan's most recent book is Experimental Man: What one man’s body reveals about his future, your health, and our toxic world (John Wiley). His last book was Masterminds: Genius, DNA and the Quest to Rewrite Life (Harper Perennial). He also wrote the international bestseller Calendar: Humanity's Epic Struggle to Determine a True and Accurate Year (Harper-Collins/Avon), published in 19 languages, and a bestseller in 14 countries.
Duncan is a Contributing Editor to Wired, and Discover, and a science columnist for the San Francisco Chronicle, a commentator for NPR's Morning Edition and co-host of BioTech Nation on NPR. He has been a special correspondent and producer for ABC's Nightline and 20/20, and a producer for Discovery Television. He is a correspondent for NOVA's ScienceNow!. He is a regular contributor to National Geographic, Fortune and MIT Technology Review, and was a longtime correspondent for Life.
He also writes for Harper's, Atlantic Monthly, Smithsonian, Outside, The Telegraph, The Guardian, The Washington Post Book World, and The New York Times, among others. He contributes to the Dialogues column for Discover.
Fred Frank
Fred Frank, PJ Solomon
James Heywood
James Heywood is the Co-Founder and Chairman of Patients Like Me.
Regis B. Kelly
Regis B. Kelly is executive director of California Institute for Quantitative Biosciences (QB3) at the University of California, San Francisco.
Edward Kirulutu
Edward Kirulutu, CTO, Omicia, former Senior Director of Informatics at Merck Research Labs
Fred Lee
Fred Lee, MD, CMO of P4 Institute
Sanjay Mistray
Sanjay Mistray, PhD, Quaker BioVentures
Lesa Mitchell
Lesa Mitchell is vice president of Advancing Innovation at the Ewing Marion Kauffman Foundation.
Linda Molnar
Linda Molnar, PhD, founding principal, LKM Strategic Consulting
Aza Raskin
Aza Raskin is the co-founder and former Creative Lead for Firefox.
Eric Schadt
Dr. Schadt oversees the scientific strategy for Pacific Biosciences, including creating the vision for next-generation applications of the company's technology, contributing to the evolution of Pacific Biosciences' transformative sequencing technology, and playing a key role in the company's strategic relationships.
He is also a founding member of Sage Bionetworks - an open access genomics initiative designed to build and support databases and an accessible platform for creating innovative dynamic disease models.
David Shaywitz
David Shaywitz, MD, PhD, Director of Strategic and Commercial Planning, Theravance
Sue Siegel
Sue Siegel, Mohr Davidow Ventures
Ralph Snyderman
Ralph Snyderman, MD, Chancellor Emeritus, Duke University
Stephen Spielberg
Stephen Spielberg, MD, PhD, is the director of the Center for Personalized Medicine at Children's Mercy Hospital in Kansas City and the former Dean of Dartmouth Medical School.
John Wilbanks
As VP of Science, John Wilbanks runs the Science Commons project at Creative Commons. He came to Creative Commons from a Fellowship at the World Wide Web Consortium in Semantic Web for Life Sciences. Previously, he founded and led to acquisition Incellico, a bioinformatics company that built semantic graph networks for use in pharmaceutical research & development. Previously, John was the first Assistant Director at the Berkman Center for Internet and Society at Harvard Law School and also worked in U.S. politics as a legislative aide to U.S. Representative Fortney (Pete) Stark.
John holds a Bachelor of Arts in Philosophy from Tulane University and studied modern letters at the Universite de Paris IV (La Sorbonne). He is a research affiliate at the MIT Computer Science and Artificial Intelligence Laboratory in the project on Mathematics and Computation. John also serves on the Advisory Boards of the U.S. National Library of Medicine's PubMed Central, the Open Knowledge Foundation, the Open Knowledge Definition, and the International Advisory Board of the Prix Ars Electronica's Digital Communities awards. He also serves on the Board of Directors of the Fedora Commons digital repository organization.
Extent of continuing physical, emotional, mental, and social ability to cope with one's environment. Good health is harder to define than bad health (which can be equated with presence of disease) because it must convey a more positive concept than mere absence of disease, and there is a variable area between health and disease. A person may be in good physical condition but have a cold or be mentally ill. Someone may appear healthy but have a serious condition (e.g., cancer) that is detectable only by physical examination or diagnostic tests or not even by these.
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