Personalized Health Project: An Action Summit for Life Science Leaders
The Personalized Health Project and video was sponsored by the Ewing Marion Kauffman Foundation.
Welcome and Opening Remarks by David Ewing Duncan; introduction of co-organizers and the co-authors of the PHP study.
Lesa Mitchell, VP of Advancing Innovation, Ewing Marion Kauffman Foundation
Regis Kelly, PhD, Executive Director, California Institute for Quantitative Biosciences, University of California, San Francisco
Session I: The Gaps
An overview of eleven "gaps" between discovery and application in personalized health. Presented by Frank Douglas, MD, PhD, co-author of the PHP study; President and CEO, Austen BioInnovation Institute in Akron, Ohio; founder of MIT's Center for Biomedical Innovation
Cultural: Stephen Spielberg, MD, PhD, Director, Center for Personalized Medicine, Children's Mercy Hospital, Kansas City; former Dean, Dartmouth Medical School
Clinical: Charis Eng, MD, PhD, Chair and Director, Genomic Medical Institute, Cleveland Clinic
Government and Law: Edward Abrahams, PhD, President, Personalized Medicine Coalition
Commercial: Ryan Phelan, CEO and Founder, DNA Direct
"Funding the Entrepreneurs": Brook Byers, Kleiner, Perkins, Caufield and Byers
Arts and Science Offering: Film clips from award-winning 2011 Sundance Documentary "Connected" presented by Director Tiffany Shlain (also founder of The Webby Awards.) She will be present for questions at break.
Bio
Edward Abrahams
Edward Abrahams, PhD is president of the Personalized Medicine Coalition.
Paul Billings
Paul Billings, MD, PhD, is CMO of Life Technologies.
Brook Byers
Brook Byers is a partner at Kleiner, Perkins, Caufield and Byers.
Frank Douglas
Frank Douglas, MD, PhD, co-author of the Personalized Health Project study; President and CEO of Austen BioInnovation Institute in Akron, Ohio; and founder of MIT's Center for Biomedical Innovation.
David Ewing Duncan
David Ewing Duncan is an award-winning, best-selling author of six books and numerous essays, articles and short stories, and a television, radio and film producer and correspondent. He is the co-host of NPR's Biotech Nation.
Duncan's most recent book is Experimental Man: What one man’s body reveals about his future, your health, and our toxic world (John Wiley). His last book was Masterminds: Genius, DNA and the Quest to Rewrite Life (Harper Perennial). He also wrote the international bestseller Calendar: Humanity's Epic Struggle to Determine a True and Accurate Year (Harper-Collins/Avon), published in 19 languages, and a bestseller in 14 countries.
Duncan is a Contributing Editor to Wired, and Discover, and a science columnist for the San Francisco Chronicle, a commentator for NPR's Morning Edition and co-host of BioTech Nation on NPR. He has been a special correspondent and producer for ABC's Nightline and 20/20, and a producer for Discovery Television. He is a correspondent for NOVA's ScienceNow!. He is a regular contributor to National Geographic, Fortune and MIT Technology Review, and was a longtime correspondent for Life.
He also writes for Harper's, Atlantic Monthly, Smithsonian, Outside, The Telegraph, The Guardian, The Washington Post Book World, and The New York Times, among others. He contributes to the Dialogues column for Discover.
Charis Eng
Charis Eng, MD, PhD, is Chair and Director of Genomic Medical Institute at the Cleveland Clinic.
Regis B. Kelly
Regis B. Kelly is executive director of California Institute for Quantitative Biosciences (QB3) at the University of California, San Francisco.
Lesa Mitchell
Lesa Mitchell is vice president of Advancing Innovation at the Ewing Marion Kauffman Foundation.
Ryan Phelan
Ryan Phelan is CEO and founder of DNA Direct.
Tiffany Shlain
Honored by Newsweek as one of the "Women Shaping the 21st Century," Tiffany Shlain is a filmmaker, founder of the Webby Awards, and cofounder of the International Academy of Digital Arts & Sciences. A celebrated thinker and catalyst, Tiffany is known for her ability to illuminate complex ideas in culture, science, technology, and life through her unique films, dynamic talks, and projects. Her films and work have received 50 awards and distinctions. Her last four films premiered at Sundance, including her new 2011 acclaimed feature documentary, "Connected: An Autoblogography about Love, Death & Technology," which the New York Times hailed as "Examining Everything From the Big Bang to Twitter," and the US State Department just selected it as one of the films to represent American in their 2012 American Film Showcase. She is currently working on a new film series, that includes "A Declaration of Interdependence and her new film "Brain Power" looking at the development of the human brain set for completion this spring. She and her team are customizing these films for free for any non-profit around the world. www.tiffanyshlain.com
Stephen Spielberg
Stephen Spielberg, MD, PhD, is the director of the Center for Personalized Medicine at Children's Mercy Hospital in Kansas City and the former Dean of Dartmouth Medical School.
Extent of continuing physical, emotional, mental, and social ability to cope with one's environment. Good health is harder to define than bad health (which can be equated with presence of disease) because it must convey a more positive concept than mere absence of disease, and there is a variable area between health and disease. A person may be in good physical condition but have a cold or be mentally ill. Someone may appear healthy but have a serious condition (e.g., cancer) that is detectable only by physical examination or diagnostic tests or not even by these.
Walcoff lays out a clear explanation of what needs to be done regarding reforms at the Food and Drug Administration. Among the new FDA reforms is a spotlight on personalized medicines and a more streamlined development pathway for new pharmaceutics and medications. Overall, the trend is moving towards personalized you health in 2012 and beyond.
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