Robert Cook-Deegan & John Wilbanks: Enabling Sharing
Reports from Communities of Interest
APRIL 16, 2011 -- PART 3: COMMITMENTS FOR 2011
The final part of the Congress will connect the strands of day 1 and consider what can be done. There will be a keynote on how communities can effect change followed by reports from the five Communities of Interest, concluding with a session where attendees will be asked what they want to do, or will do, as a follow-up to the Congress. Attendees will film each other outlining their commitments as part of both the larger Commons community and as part of their Community of Interest. There will then be a closing keynote including a report on the large "game changer" by Stephen Friend.
At the conclusion of the Congress attendees will understand how their own work connects to the greater movement of change in how we must approach biology and how biology relates to health care. Participants will be challenged to articulate how their work from the previous day and over the next year might lead to more sharing, better resource allocation, and faster progress. Participants will have established a set of communities ready to do active work.
Robert Cook-Deegan became Director of the IGSP's Center for Genome Ethics, Law & Policy in July 2002. He was previously director of the Robert Wood Johnson Foundation Health Policy Fellowship program at the Institute of Medicine, National Academy of Sciences, a Robert Wood Johnson Health Policy Investigator at Georgetown University, and a seminar leader at Stanford-in-Washington. He worked at The National Academies in various capacities from 1991 until coming to Duke.
He is the author of The Gene Wars: Science, Politics, and the Human Genome and an author on over 200 articles.
Dr. Cook-Deegan was a member of the Board of Directors, Physicians for Human Rights, 1988-1996, with whom he participated in human rights missions to Turkey, Iraq and Panama.
As VP of Science, John Wilbanks runs the Science Commons project at Creative Commons. He came to Creative Commons from a Fellowship at the World Wide Web Consortium in Semantic Web for Life Sciences. Previously, he founded and led to acquisition Incellico, a bioinformatics company that built semantic graph networks for use in pharmaceutical research & development. Previously, John was the first Assistant Director at the Berkman Center for Internet and Society at Harvard Law School and also worked in US politics as a legislative aide to U.S. Representative Fortney (Pete) Stark.
John holds a Bachelor of Arts in Philosophy from Tulane University and studied modern letters at the Universite de Paris IV (La Sorbonne). He was a research affiliate at the MIT Computer Science and Artificial Intelligence Laboratory in the project on Mathematics and Computation. John also serves on the Advisory Boards of the U.S. National Library of Medicine’s PubMed Central, the Open Knowledge Foundation, the Open Knowledge Definition, and the International Advisory Board of the Prix Ars Electronica’s Digital Communities awards. He also serves on the Board of Directors of the Fedora Commons digital repository organization.
The practice concerned with the maintenance of health and the prevention, diagnosis, and treatment of disease. Medicine may be practiced in doctors' offices, health maintenance organization facilities, hospitals, and clinics. In addition to family practice, internal medicine, and specialties for specific body systems, it includes research, public health, epidemiology, and pharmacology. Each country sets its own requirements for medical degrees (M.D.'s) and licenses. Medical boards and councils set standards and oversee medical education. Boards of certification have stringent requirements for physicians seeking to practice a specialty, and they stress continuing education. Advances in therapy (seetherapeutics) and diagnosis have raised complex legal and moral issues in areas such as abortion, euthanasia, and patients' rights. Recent changes include treating patients as partners in their own care and taking cultural factors into consideration.