Personal genomic testing (the analysis of the DNA of individuals) is now available for less than $400. The consequences of personal genetic testing are often debated, with advocates arguing that genetic data can lead to improved health care and critics warning that consumers may be unduly worried upon learning results.
California regulations impose conditions on firms providing personal genomic testing. This symposium examines genomic testing technology, its ramifications, government regulation of the industry, and whether individuals should have their genome analyzed.
Linda Avey is co-founder and CEO of Curious, Inc., a personal data discovery platform. Previously, she co-founded 23andMe, the leading personal genetics company.
Daniel Ballon is Senior Policy Fellow in Technology Studies at the Pacific Research Institute. Dr. Ballon's research focuses on policies which promote innovation in the technology sector. He previously spent ten years conducting applied research in biotechnology, and his work has been published in leading biomedical journals.
Prior to joining PRI, he served as science and technology policy advisor for former Speaker of the House Newt Gingrich at the American Enterprise Institute.
Dr. Ballon received his Ph.D. in Molecular and Cell Biology from the University of California at Berkeley and a B.A. in Molecular Biology and Biochemistry from Wesleyan University.
Mark B. Gerstein
Mark B. Gerstein is an American physical and biological scientist working in bioinformatics.
As of 2006 he is co-director of the Yale Computational Biology and Bioinformatics program, and Albert L. Williams Associate Professor of Biomedical Informatics, Associate Professor of Molecular Biophysics & Biochemistry and Associate Professor of Computer Science at Yale University.
David C. Magnus
David C. Magnus, Ph.D. is Associate Professor of Pediatrics and Medicine, Stanford University. Magnus is also Director of the Stanford Center for Biomedical Ethics.
U.S. research effort initiated in 1990 by the U.S. Department of Energy and the National Institutes of Health to analyze the DNA of human beings. The project, intended to be completed in 15 years, proposed to identify the chromosomal location of every human gene, to determine each gene's precise chemical structure in order to show its function in health and disease, and to determine the precise sequence of nucleotides of the entire set of genes (the genome). Another project was to address the ethical, legal, and social implications of the information obtained. The information gathered will be the basic reference for research in human biology and will provide fundamental insights into the genetic basis of human disease. The new technologies developed in the course of the project will be applicable in numerous biomedical fields. In 2000 the government and the private corporation Celera Genomics jointly announced that the project had been virtually completed, five years ahead of schedule.
so after you've catalogued the genetic data from citizens & mapped the genome
who is responsible for the research that is fucked up but rolled out to the World?
or who ' owns ' their own DNA after some company has copyright protected some snippets or 'adaptations'?
if someone is catalogued in your Family... & the cops want to ' investigate '... you aren't entitled to the privacy of your own DNA?
you'll bitch about your personal fingerprints... but not global warrant-less wiretapping or the cataloguing of DNA that will identify your progeny for generations?
You think you've got problems with Health Insurance providers writing you off for PRE-EXISTING CONDITIONS now??? ... you gotta wake up: people are going to get hired based on DNA scanning & healthcare conditions in the Future...
this is bullshit: privacy is privacy .
what is HIP & comfortable this year, is NOT something you can GIVE AWAY to the next generation, now is it?
Its not a *tattoo*: its the Future of our entire BIOSPHERE & these people are playing with it like making arts & crafts Summer Camp projects out of macaroni & SillyPutty
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